Tuesday, April 17, 2007

A Call & IEP's

Another call for a placement. Sometimes it just breaks my heart that we are needed so badly. This call was for the little one mentioned in this post back in mid February. He needs to be close to the children's hospital as he now waits for a bone marrow transplant. The call was just a message on the answering machine so we will get more information tomorrow and make a decision. It seems like too much to take on right now but we'll wait for more info before we say no to him. The fact that she's calling us means that they are having problems finding a place for him to stay.

Today we received a copy of Lili's IEP(Individualized Education Program) in the mail. In evaluating children with special needs there are a number of areas of developmental delays/disabilities that qualify SN kids for an IEP. Seven areas in fact. Lili qualified in 6 of the 7 areas:
1. Vision
2. Health/Motor
3. Speech/Language
4. Social/Emotional/Behavioral
5. Cognitive/Adaptive Behavior
6. Academic/Pre-academic Achievement

The only area she did not needs services/adaptations was Hearing. Is this a good time to mention that we're going back to the ENT to get new ear tubes in and see if all these ear infections has caused any permanent hearing impairments? Oy Vey.

....and some good news for a change.... Lili's IEP meeting in late January was the last time her Receptive and Expressive language were tested. At that time she scored 19 months in Receptive and 18 months in Expressive. She was tested again today at the language based preschool she has been attending since then and her scores were at 36 and 30 months. Those are HUGE gains in just 2 short months. Yeah Lili! Not so long ago I was dreading what starting preschool would mean. Now I can't be happier with her transition and her improvement. Yeah again!

1 comment:

Beth said...

I just want to say I am thinking of you. We have had several referrals that were out of the realm of what we could realistically do. Truth be told, even when we say yes to kids whose needs are squarely within what we feel sure we can handle, we still feel completely overwhelmed when we're in the middle of those first few weeks, and have moments of second-guessing our decision. But even knowing that, it's so hard to say no when the need is so great.